Charlie Gard’s parents’ hearts were broken as they had a meltdown, after a London judge ruled that their 8-month-old baby could be removed from life support against their will.
Little Gard was born with a condition called “mitochondrial depiction syndrome” which causes brain damage and muscle weakness. It is so rare that only 16 children in the world are known to have it.
The judge ruled that it was in the baby’s best interest to be taken off the support….which would be absolutely devastating for any parent to hear.
The judge said he rendered his verdict “with the heaviest of hearts” but that it was in “Charlie’s best interests” to transition him to palliative care and allow him to “die with dignity.” The judge went on to praise the “absolute dedication” of Chris Gard and Connie Yates to their child—they raised $1.5 million on GoFundMe for experimental treatment in the US—but Gard and Yates had left the courtroom by the time the judge was finished explaining his verdict, according to the BBC.
Charlie has irreversible brain damage, is deaf and blind, and requires a ventilator to breathe, the Telegraph reports. But doctors say he can still feel pain.
The judge ruled keeping Charlie on life support to move him to the US for treatment would possibly cause him undue suffering. Even the US expert offering to treat Charlie says his condition likely wouldn’t improve.
This is such a tough situation. The little boy is virtually locked into his own world, but he is his parent’s whole world, and he can still feel pain. It is truly a heartbreaking situation.
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